Dame Cicely Saunders OM |
Founder of the hospice movement who transformed the care of the terminally ill
The Weekly Telegraph
Issue No. 731
Wed Jul 27 2005 - Tues Aug 2 2005
DAME CICELY SAUNDERS,who has died aged 87, was
regarded as the mother of the
modern hospice movement;
at St Christopher's Hospice,
Sydenham, south London,
founded in 1967, she charted
new approaches in techniques
for treatment of the terminally
ill, based on her Christian
belief that no human life, no
matter how wretched, should
be denied dignity and love.
Before St Christopher's
opened its doors, there had
been hospices, mostly run
by nuns, which provided
comfort for the dying; but
they were backward in their
understanding of medical
techniques. Even on busy
hospital wards where many
people spent their final hours,
very little was known about
the management of pain. With
a few exceptions, medical and
surgical textbooks disregarded the problems of pain
control; and chronic pain in
the dying was usually either
ignored or treated too late, by
injection.
Cicely Saunders first had
the idea of creating a modern
hospice in 1948, when she was
working as a lady almoner
(medical social worker) at St
Thomas's Hospital in London.
There she met David Tasma, a
young Polish waiter who, having escaped from the Warsaw
ghetto, was dying of cancer, in
great pain, on a ward she was
visiting. Though he had little
English, they spent their time
together talking about death
and the care of the dying: "He
needed to make his peace
with the God of his fathers,
and the time to sort out who
he was," she recalled. "We
discussed the idea of somewhere that could have helped
him to do this better than a
busy hospital ward."
Cicely Saunders fell deeply
in love and, when he died,
he left her all he had - £500
- and told her: "I'll be a window in your home." "It was as
though God was tapping me
on the shoulder and telling
me 'You've got to get on with
it'," she recalled.
Carrying Tasma's memory
with her, Cicely Saunders
became a physician and
went on to found St Christopher's Hospice, where she
hoped to "help the dying to
live until they die and their
families to live on". She had
no new drugs, but showed
how, by using them earlier in
anticipation of, rather than in
response to, the onset of pain,
terminally ill patients could
be kept comfortable until
the end.
She believed in the importance of allowing patients to
control their own treatment,
and recognised the need to
work closely with families of
the terminally ill. The wards
of St Christopher's were light
and airy and often teeming
with children and pets.
In her campaign to establish a hospice, Cicely Saunders encountered apathy, even
outright hostility, from the
medical profession. Though
she was widely revered as a
sort of secular saint, it was
only through being authoritative, and often downright
difficult, that she forced
the medical profession to
acknowledge what medicine can do for the dying.
The movement changed the face of death for millions
of people; not only the dying,
but also those around them.
By 1993 there were 173 hospices in Britain adhering to
her philosophy,
Cicely Mary Strode Saunders was born in 1918 at Barnet, north London, the eldest
child of an estate agent.
She died at St Christopher's Hospice.
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Shameless culture of tin-rattling begat the hospice movement |
Britain shows the way in care for the dying, says Cassandra Jardine
The Weekly Telegraph
Issue No. 731
Wed Jul 27 2005 - Tues Aug 2 2005
THE DEATH of Dame Cicely Saunders last week has served as a
reminder of how recently the hospice movement was
created. Driven by a desire to
"help the dying to live until
they die, and their families to
live on", she opened the first
hospice in 1967. The
movement has since spread
throughout Britain, and
inspired imitations all over
the world.
It appears incredible that,
40 years ago, there was no
expertise in pain relief and
the other comforts needed to
allow for a peaceful death. It
now seems like the hallmark
of a civilised society to attach
as much importance to
palliative care as to the more
glamorous aspects of
curative medicine. And yet,
the need for that same kind
of care for children is only
now becoming accepted.
While adults need
somewhere for the last
months of their life, sick
children need somewhere to
go year after year, places in
which they can spend time
with their families where
there is not only expert care
but opportunities for them to
enjoy their brief lives. Again,
Britain has shown a lead.
Since 1982, when Sister
Frances Domenica opened
Helen House in Oxford, 35
other children's hospices
have opened throughout
Britain, and seven more are
planned.
Britain is in the lead
because of our shameless
culture of tin-rattling. Our
decentralised health system
may be clunking and patchy,
but energetic individuals are
used to making up for its
shortcomings; we are happy
to bungee jump and give
balls for good causes, and
also to give our own time.
No other country has those
advantages. In America,
hospice development has
been stymied by health
insurance that covers only
the last six months of life -
and who knows when that
will be? The centralised and
hospital-based health care
systems of western Europe
have been slow to invest in
the more homely hospices.
As for developing countries,
caring for children who will
not live into adulthood has
been low on their list of
priorities.
In the past few years,
however, that has changed.
Visitors are pouring in to
learn from our children's
hospices, from Japan to the
Ukraine, from France to
Korea and, most recently,
Africa.
"I have learnt so much,
especially about pain and
symptom management, from
British hospices," says Joan
Marston, who runs a hospice
for children with AIDS in
Bloemfontein, South Africa.
"In 1998, when we started,
we had very little idea of
what a hospice should be. I
have taken ideas and
adapted them to our
resources - our multi-
sensory room, for example,
is a simple wooden hut."
The learning is not all one-way. Via the internet,
information is swapped
internationally on the care of
children with rare diseases
and those running British
hospices have been inspired
by how problems are tackled
elsewhere. Among recent
ideas: training grandparents
as carers (South Africa), paid
leave for carers (Norway),
and the need for spiritual as
well as physical support
(Poland).
Lack of state funding
makes for constant anxiety.
While adult hospices receive
a third of their funding from
statutory sources, children's
hospices get only five per
cent. Problems are
compounded by the growing
number of children with life-limiting diseases, some of
whom can survive into
young adulthood.
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